The group have also teamed up with Care Opinion (www.careopinion.org.uk) to make it easy for people to share their experiences in their own words online.
Clare Gallie, CEO of Lewis-Manning Hospice Care, said, “This project will help us to understand what our patients really want and allow us to focus our support on what really matters to them.”
Palliative and end of life care staff will be invited to respond (including online) to people who have shared their stories.
Saskie Dorman, consultant in Palliative Medicine at Poole Hospital NHS Foundation Trust who is based at Forest Holme Hospice in Poole, explained, “The current standard surveys and requests for feedback from families and patients are relatively impersonal. We don’t learn as much as we could or should from people’s experiences, both what went well and what needs to improve. This work will help us to learn directly from the stories and experiences shared about what’s important to people about their care and support, what’s working well and what needs to be improved.”
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